Today, Jaelon wants to say Happy Birthday to his Aunts! His Auntie and Great Auntie share the same birthday, they're both loud and crazy and we love them just the same.
HAPPY BIRTHDAY to my lil sis and my Auntie, love you everyday!!!
Saturday, November 30, 2013
Friday, November 29, 2013
Happy Friday!
I hope my American family/friends have a wonderful Thanksgiving weekend!
Yesterday, was another IBI meeting for me. This was just the final report from the ABA Lead that came and observed Jaelon in his routine. What she looked at was his initial presentation, how he does with instructions, play skills and his rate of excessive behaviours. It was all very positive and I really loved reading the report as I can really see how much he has grown. Yesterday also marked the first time he got 1/2 dressed by himself!!! I know some of you may think that's not a big deal, but IT REALLY IS! He put on his undies and pants all by himself (I didn't even need to tell him to focus and use 2 hands!), now he had two feet in one hole for his undies and his pants were on backward but HE TOTALLY DID IT HIMSELF!!
Today, is a no school day so we're having a slow moving morning. Maybe finally get to some Christmas baking... Though I still have no idea what we're going to bake. Sometimes it's great not having a plan! I know that the mall is the last place we'll be today with the black Friday sales. Anyone venturing out, good luck!!
Happy Friday, until tomorrow!!
Cheers :D
Yesterday, was another IBI meeting for me. This was just the final report from the ABA Lead that came and observed Jaelon in his routine. What she looked at was his initial presentation, how he does with instructions, play skills and his rate of excessive behaviours. It was all very positive and I really loved reading the report as I can really see how much he has grown. Yesterday also marked the first time he got 1/2 dressed by himself!!! I know some of you may think that's not a big deal, but IT REALLY IS! He put on his undies and pants all by himself (I didn't even need to tell him to focus and use 2 hands!), now he had two feet in one hole for his undies and his pants were on backward but HE TOTALLY DID IT HIMSELF!!
Today, is a no school day so we're having a slow moving morning. Maybe finally get to some Christmas baking... Though I still have no idea what we're going to bake. Sometimes it's great not having a plan! I know that the mall is the last place we'll be today with the black Friday sales. Anyone venturing out, good luck!!
Happy Friday, until tomorrow!!
Cheers :D
Wednesday, November 27, 2013
Tuesday, November 26, 2013
Weekend catch-up
This past Thursday, I went to an ASD support group. They meet once a month and let me tell you, it was the best thing ever!! Not that I don't have support from the people around us but to talk with other moms that know exactly what you're talking about, share their stories, experiences and a lot of laughs. It was indeed the best thing ever!
On Friday, we had an early movie night. I even ordered in a pizza, I haven't ordered pizza in a long while... Long enough that Jaelon asked why the pizza was in a box, which actually makes me feel really good. So we had a pizza picnic and watched Frosty the Snowman. Then Grandpa picked him up and off he went for a sleep over at Grandma and Grandpa's. I get a kid-less weekend and it snows, plans fell through and that was that. But I did get a kid-less weekend, so it's all good!
Yesterday, we just went to the mall. It was going great so Jaelon got to see Santa or I should say show Santa his buses. We had a good morning and the rest of the day, well not so good.... Someone had to have quiet time in his room for the first time in a few weeks and that was how the day went.
BUT today is a new day, it's a school day and our first time walking to school with snow. I'm not looking forward to it but boy-o is. It amazes me the amount of parents that drive their kids to school when they are within walking distance and I'm sure that number is going to be bigger with the snow here.
That said, it's time to get moving for the day. Until tomorrow, keep warm!!!
Thursday, November 21, 2013
Mind full of GRIBI
What the hell is GRIBI, you ask??? It stands for Getting Ready for IBI. Back up what is IBI, you ask?? That stands for Intensive Behaviour Intervention. Why am I bringing this up??
Well, it's not a shock that Jaelon is diagnosed with Autism. He was "officially" diagnosed in January of this year, it was a lot of waiting leading up to that (I know I've mentioned THAT frustration) and we've still been playing that game since he was diagnosed.
It took a month for Jaelon to adjust to school, as I'm sure it took other kids to adjust, but he has loved it from the first week. After about a month and a half, I had a little meeting with his teacher and E.A. just to hear how he really was doing. That ended so positively, not that I was surprised... Well, I was a little but in a good way! That day, we got home and there was a message saying Jaelon had been picked up for IBI.... Hold the phone.... he's not suppose to be picked up for that for another TWO years.... Of course, my mind starts to go in all these directions and won't shut off, I'm nearly going crazy..... Time to turn to some of my Mama's! What would I do without them, without ALL of them?? (Oh, I know I've mentioned my Mama group before!!!) So I feel a little better after talking with them (they know who they are so I won't mention names). Make the call the next day to set up a meeting.
That should bring us to this week... On Monday, I had an info meeting and though I'm still overwhelmed with information, I will try my best to keep this brief but have you all updated. So last week, started GRIBI (getting ready for IBI) with observations at home at different times of our routine (Monday being our last day). It's all about data, so she's collecting data about Jaelon and how he responds at those different times. (The title for her is ABA Lead.) She was here, trying to be "a fly on the wall" which didn't work, Jaelon quite liked her so he wanted to play! And of course she loved him!!!
I'm getting of track... Anyways, Monday and the info meeting. So GRIBI is "a 6 month consultative service to help families prepare for IBI." Which is where we are right now.
IBI is an "evidence-based approach to change rate of learning in children with ASD" It is, as the name suggests, Intense "with a schedule of 25-30 hours/week." Also just so you know not every child with ASD will do IBI, they have to be eligible. How long he stays in IBI depends on him and how he is responding but it typically lasts 1-2 yrs. The great thing is there is a program called Connections for Students, they start the transition back to school 6 months before IBI would end and then supports them for 6 months afterwards. Jaelon will have this available for him until he is 18 yrs old. Understand, he only gets this service if he does the IBI program so I need to think of later on down the road. He will have his own team with someone here in our home everyday working with him. His team will consist of:
"Service coordinator/social worker (which I requested for after he was diagnosed, so she's been with us for a while).
Clinical Director
Assessment Team
Clinical Supervisor
Autism Spectrum Disorder Community Consultant (ASDCC)
ABA Lead
Senior Therapist
Lead Instructor Therapist (IBI Lead)
Instructor Therapists"
Some of these people we won't see, some we see now and some we will see once a week or everyday, once he starts.
As it stands, he should be starting as early as March of next year. So, yes we still have some time and technically my decision for him to go ahead with IBI isn't official but he will be doing it. 5 days a week at home, that is going to be a MAJOR adjustment and our regular during the day activities will be no longer so I have a lot of planning coming up and there has to be someone home (obviously) at all times, though I'm considering part time daycare but that's not set in stone yet.... But there it all is (I think!)
I really do have a mind full of GRIBI... time for a drink... Well, ok I'll settle for breakfast, anyone want to come cook for me??
Love and Hugs,
Rox and Jaelon
(all "quote" information taken from TVCC)
Wednesday, November 20, 2013
Monday, November 18, 2013
It's an ENJO dusting party!
Happy Monday!!!
It's beginning to look a lot like Christmas.... and an Enjo dusting party!
That was our weekend, we decorated for Christmas, Jaelon had more fun decorating himself and having the cat chase him all over the house with the dragging tinsel. I put all the decorations on the tree (though he did try one or two) and of course lights went up around the house. My boy loves his lights!!! Still have stockings to put up and maybe another set of lights but so far I got a "Wow, it looks pretty Mommy, can I have some candy?" and "I like Christmas better than Halloween." Now to get going on gifts and I have no idea what we are doing this year for our homemade gift but I managed to get his teacher/EA gifts done, for the most part.
I also had my very first ENJO demo this weekend or if your Jaelon, I had my first "ENJO dusting party!" (he has own enjo duster and I've had a few demos at our house.) So Jaelon had a sleepover at Papa and Nana's and I just prepared for that. I definitely have room for a lot of improvement but it still went well. Thanks to my great great friend, Carey, for hosting.
This morning we have our last observation for IBI, actually I'm going to have to cut this short, it's a 7:30 am observation time and I lost track of the time. So time to get moving for the day.
Hope everyone had a great weekend and remember if you clean, there is probably an ENJO for that ;)
CHEERS!!!
It's beginning to look a lot like Christmas.... and an Enjo dusting party!
That was our weekend, we decorated for Christmas, Jaelon had more fun decorating himself and having the cat chase him all over the house with the dragging tinsel. I put all the decorations on the tree (though he did try one or two) and of course lights went up around the house. My boy loves his lights!!! Still have stockings to put up and maybe another set of lights but so far I got a "Wow, it looks pretty Mommy, can I have some candy?" and "I like Christmas better than Halloween." Now to get going on gifts and I have no idea what we are doing this year for our homemade gift but I managed to get his teacher/EA gifts done, for the most part.
I also had my very first ENJO demo this weekend or if your Jaelon, I had my first "ENJO dusting party!" (he has own enjo duster and I've had a few demos at our house.) So Jaelon had a sleepover at Papa and Nana's and I just prepared for that. I definitely have room for a lot of improvement but it still went well. Thanks to my great great friend, Carey, for hosting.
This morning we have our last observation for IBI, actually I'm going to have to cut this short, it's a 7:30 am observation time and I lost track of the time. So time to get moving for the day.
Hope everyone had a great weekend and remember if you clean, there is probably an ENJO for that ;)
CHEERS!!!
Friday, November 15, 2013
Time for change
Another blog-cation! Only this time back and with a new look and yes a new Blog name. No reason for either, just felt the need to change things up. We've had a lot of changes in the past few months, this one is the easiest of them all.
What have we been doing lately???
Jaelon is loving school, his teacher and E.A. are awesome! I wish he could have them for the entire duration of his school life, that's how awesome they are. But alas, he can not and actually from the looks of things, he may only be with them until Jan/Feb. of next year.....
It turns out the 2 year wait list he was on for IBI (Intensive Behaviour Intervention) has turned into a 1 year wait time, he is set to start sometime early of next year. It makes me sad and happy, I'm so all over the place it's insane. I'm happy because we no longer have to wait, I'm sad because.... well, because he has had such a great positive reaction to school and of course his teacher and E.A. have a lot to do with that. So we've been busy with having observations at home, appointments/meetings ect. It's these times where being a single parent takes it's toll... But gotta do what you gotta do.
As for me, somewhere in there I decided to become self employed. You know because we haven't had enough change. So I've started to teach people how to clean using NO chemicals!
I'm an ENJO consultant and I love it!!! It's amazing and yes you will hear more about it.
For now, quiet time is about over here so check back often, I can't promise a blog everyday but it will be more often then before.
Cheers!!!
Rox and Jaelon
What have we been doing lately???
Jaelon is loving school, his teacher and E.A. are awesome! I wish he could have them for the entire duration of his school life, that's how awesome they are. But alas, he can not and actually from the looks of things, he may only be with them until Jan/Feb. of next year.....
It turns out the 2 year wait list he was on for IBI (Intensive Behaviour Intervention) has turned into a 1 year wait time, he is set to start sometime early of next year. It makes me sad and happy, I'm so all over the place it's insane. I'm happy because we no longer have to wait, I'm sad because.... well, because he has had such a great positive reaction to school and of course his teacher and E.A. have a lot to do with that. So we've been busy with having observations at home, appointments/meetings ect. It's these times where being a single parent takes it's toll... But gotta do what you gotta do.
As for me, somewhere in there I decided to become self employed. You know because we haven't had enough change. So I've started to teach people how to clean using NO chemicals!
I'm an ENJO consultant and I love it!!! It's amazing and yes you will hear more about it.
For now, quiet time is about over here so check back often, I can't promise a blog everyday but it will be more often then before.
Cheers!!!
Rox and Jaelon
Subscribe to:
Posts (Atom)